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Books

1.Being With Dying 

by Joan Halifax

2.It's OK That You're Not OK: Meeting Grief and Loss in a Culture that Doesn't Understand 

By Megan Divine

3. The Grieving Brain: The Surprising Science of How We Learn from Love and Loss

by Mary Francis O'Connor

4.The Beauty of What Remains: How Our Greatest Fear Becomes Our Greatest Gift

by Steve Leder 

5.The End Is Just the Beginning: Lessons in Grieving for African Americans

by Arlene Churn  

6.Grief Day By Day: Simple Practices and Daily Guidance for Living with Loss

by Jan Warner

7.The Grief Recovery Handbook

by John W. James and Russell Friedman

8. Dear Caregiver, It's Your Life Too: 71 Self-Care Tips To Manage Stress, Avoid Burnout And Find Joy Again While Caring For A Loved 

by Katie Duncan 

Grief 

Tender Hearts On Line Grief Group

https://grief.com/

Organizations 

1.Reimagine

Reimagine hosts community-driven experiences that bring creativity, connection, and essential conversation to communities around the world.

https://letsreimagine.org/

2.The Conversation Project

The Conversation Project is an initiative of the Institute for Healthcare Improvement, a not-for-profit organization that is a leader in health and health care improvement worldwide

https://theconversationproject.org/

Podcasts

1. Best Life Best Death.  Diane Hulllet

https://bestlifebestdeath.com/podcast/

 

2. The Vigil

https://www.bbc.co.uk/sounds/play/b081lf8b

 

3. All There Is. Anderson Cooper 

 

https://www.cnn.com/audio/podcasts/all-there-is-with-anderson-cooper

4. This American Life: The Last Thing Before I go

https://www.thisamericanlife.org/597/one-last-thing-before-i-go-2016

 

Code of Ethics (INELDA)

Commitment to a Dying Person & Loved Ones

The EOL doula’s primary commitment is to the dying person; loved ones may be included to the extent desired by the person dying throughout the EOL doula’s involvement in the case. The EOL doula will make every effort to help the dying person maintain their sense of dignity in the face of decline.

Competence

  • The INELDA-trained doula will only represent themself as competent within the boundaries of their training and knowledge, acquired through INELDA classes and other related education, and the scope of practice as defined in the accompanying document titled: Scope of Practice.

  • The EOL doula will only use techniques that they have been educated in and/or been supervised in by people who are competent in those services or techniques.

  • The EOL doula will continue to improve their competence through formal and informal education of all kinds and by working in the field to better serve the dying.

Privacy & Confidentiality

  • The INELDA-trained doula will respect and protect the privacy of the dying person and their loved ones by carefully guarding any materials that contain personal or health related information.

  • The EOL doula will maintain the confidentiality of all information shared by a dying person or their loved ones, unless disclosure of that information is necessary to prevent serious and imminent harm to any individual.

  • The EOL doula will discuss the nature of confidentiality with a client and others involved and the limitation of the client’s rights to confidentiality.

  • The EOL doula will notify a client about any breach of confidential information in a timely manner.

Conflicts of Interest

  • The INELDA-trained doula will avoid conflicts of interest that might interfere with the exercise of their role as an impartial, nonjudgmental companion, support, and guide through the dying process. 

Respect

  • The INELDA-trained doula will treat all people—clients, loved ones, caregivers, and colleagues—with respect and will  honor the dignity of every individual involved, their personal opinions, orientation to care, style of interaction with others, the choices they make, as well as their race, religion, sexual orientation, immigration status, lifestyle, and mental or physical disability.

  • The INELDA-trained doula will not discriminate nor condone discrimination against people based on race, ethnicity, religion, sexual orientation, gender identity, age, economic status, or other personal characteristics or life circumstances.

Cultural Sensitivity

  • The EOL doula will respect and support the role of culture in the dying process and its implications for the dying person’s idea of a “good death,” and the cultural needs of loved ones around the dying person.

Integrity of the EOL Doula Role

  • The INELDA-trained doula will uphold the values of service excellence, advocacy for dying people and their families, and high standards of practice.

  • They will also adhere to the code of ethics herein stated.

Fees

  • The INELDA-trained doula who works directly for a dying person and/or their loved ones will set fees that are reasonable and commensurate with the prevailing charges for EOL doulas or similar services in their geographical area.

Termination of Services

  • The EOL doula who a client terminates for any reason will gracefully and courteously offer appropriate referrals or information that would allow the client to access other assistance in the dying process.

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